Exploring Self-Regulation of Patients with Chronic Kidney Disease Undergoing Hemodialysis

https://doi.org/10.22146/jpsi.61144

Belinda Belinda(1*), Zahrasari Lukita Dewi(2)

(1) Faculty of Psychology, Atma Jaya Catholic University of Indonesia.
(2) Faculty of Psychology, Atma Jaya Catholic University of Indonesia.
(*) Corresponding Author

Abstract


Patients with chronic kidney disease (CKD) undergoing hemodialysis often experience residual impacts of the treatment on their physical, economic, social, and psychological, to an extent that CKD is considered a barrier for individuals to fully participate and enjoy life. It is crucial for CKD patients self-regulate their cognitive, social and emotional health in order to function optimally. This research aimed to explore the self-regulation process of CKD patients. This research adopted a qualitative exploratory utilizing in-depth interview as a data collection technique. There were three participants in the research recruited through convenience sampling, two men and one female aged 50-60 years and undergoing hemodialysis within 6-10 months.  The analysis process used thematic analysis guided by a common-sense model of self-regulation. Findings showed that at an initial stage patients perceived CKD and its treatment emotionally, but this was changed over time to be more positive. Two participants had adequate coping strategies and received support from the closest relatives to assist in the evaluation, while, one participant was more emotionally harboring and lacked social support. The evaluation process could encourage participants to seek information and understand CKD better. Further research suggested that sampling techniques could involve participants with a more diverse age range in order to have more varied data that can be used by other CKD patients with diverse age range.

Keywords


elf-regulation; chronic kidney disease; hemodialysis; common-sense model of self-regulation

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References

Broadbent, E., Wilkes, C., Koschwanez, H., Weinman, J., Norton, S., & Petrie, K. J. (2015). A systematic review and meta-analysis of the Brief Illness Perception Questionnaire. Psychology and Health, 30(11), 1361-1385. DOI: 10.1080/08870446.2015.1070851.

Cameron, L.D. & Leventhal, H. (2003). The self-regulation of health and illness behavior. London: Routledge.

Carver, C.S. & Scheier, M.F. (1981). Attention and self-regulation: A control-theory approach to human behavior. New York: Springer – Verlag.

DePasquale, N., Cabacungan, A., Ephraim, P. L., Lewis-Boyér, L. P., Powe, N. R., & Boulware, L. E. (2019). Family Members’ Experiences With Dialysis and Kidney Transplantation. Kidney Medicine, 1(4), 171-179. DOI: 10.1016/j.xkme.2019.06.001.

Gao, Y., Zhou, Y., Guo, C. X., & Zhao, J. F. (2016). The relationship among hope, symptom distress, social support, coping style and monthly income in maintenance hemodialysis patients: A structural equation model. International Journal of Clinical and Experimental Medicine, 9(10), 19717-19724.

Gerogianni, S. K., & Babatsikou, F. P. (2014). Psychological aspects in chronic renal failure. Health Science Journal, 8(2), 205–214.

Gerogianni, S., Babatsikou, F., Gerogianni, G., Grapsa, E., Vasilopoulos, G., Zyga, S., & Koutis, C. (2014). Concerns of patients on dialysis: A research study. Health Science Journal, 8(4), 423–437.

Ghaffari, M., Morowatisharifabad, M. A., Mehrabi, Y., Zare, S., Askari, J., & Alizadeh, S. (2019). What are the hemodialysis patients’ style in coping with stress? A directed content analysis. International Journal of Community Based Nursing and Midwifery, 7(4),309-318. DOI: 10.30476/IJCBNM.2019.81324.0

Gillanders, S., Wild, M., Deighan, C., & Gillanders, D. (2008). Emotion Regulation, Affect, Psychosocial Functioning, and Well-being in Hemodialysis Patients. American Journal of Kidney Diseases, 51(4), 651-662. DOI: 10.1053/j.ajkd.2007.12.023

Griva, K., Seow, P. S., Seow, T. Y. Y., Goh, Z. S., Choo, J. C. J., Foo, M., & Newman, S. (2020). Patient-Related Barriers to Timely Dialysis Access Preparation: A Qualitative Study of the Perspectives of Patients, Family Members, and Health Care Providers. Kidney Medicine, 2(1), 29–41. DOI: 10.1016/j.xkme.2019.10.011

Institute of Medicine of The National Academies. (2011). Living Well with Chronic Illness: A Call for Public Health Action. Washington: National Academies Press. DOI: 10.17226/13272

Shah, S., & Chithra, K. (2017). Lived Experience of Patients Undergoing Hemodialysis. International Journal of Advanced Research, 5(4), 1418–1426. DOI: 10.21474/ijar01/3962

Jarial, S. & George, R.M. (2019). Lived experiences of patients undergoing hemodialysis. Journal of Medical Surgical Nursing Practice and Research 1(1): 17-23. DOI: 10.1186/s12882-018-1138-4

Jayanti, A., Foden, P., Wearden, A., & Mitra, S. (2016). Illness beliefs in end stage renal disease and associations with self-care modality choice. PLoS ONE, 11(7), 1-17. DOI: 10.1371/journal.pone.0154299

Karamanidou, C., Weinman, J., & Horne, R. (2014). A qualitative study of treatment burden among haemodialysis recipients. Journal of Health Psychology, 19(4), 556-569. DOI: 10.1177/1359105313475898

Kementrian Kesehatan Republik Indonesia. (2017). Situasi penyakit ginjal kronis. Diakses pada 10 November 2019 dari www.depkes.go.id/resources/download/pusdatin/infodatin/

Laudański, K., Nowak, Z., & Wańkowicz, Z. (2010). Psychological aspects of dialysis: Does cognitive appraisal determine the overall outcome? In Polskie Archiwum Medycyny Wewnetrznej,120, 49-53. DOI: 10.20452/pamw.881

Leventhal, H., Alison Phillips, L., & Burns, E. (2016). Modelling management of chronic illness in everyday life: A common-sense approach. Psychological Topics, 25(1), 1–18.

National Conference of State Legislatures. (2012). Chronic Disease Prevention and Management Strategy Chronic Disease Prevention and Management. Marryland: Health Resources and Services Administration.

Naderifar, M., Tafreshi, M. Z., Ilkhani, M., & Kavousi, A. (2017). The outcomes of stress exposure in hemodialysis patients. Journal of Renal Injury Prevention, 6(4), 275-281. DOI: 10.15171/jrip.2017.52

Newman, S., Steed, L., & Mulligan, K. (2009). Chronic physical illness: Self-management and behavioral intervention. London: Open University Press.

Nurrachman, N. & Bachtiar, I. (2011). Psikologi perempuan: Pendekatan kontekstual Indonesia. Jakarta: Universitas Atma Jaya.

Pagels, A. A., Söderquist, B. K., & Heiwe, S. (2015). Differences in illness representations in patients with chronic kidney disease. Journal of Renal Care, 41(3), 146-155.. DOI: 10.1111/jorc.12117

Revenson, T. A., & Hoyt, M. A. (2016). Chronic Illness and Mental Health. In Encyclopedia of Mental Health: Second Edition. DOI: 10.1016/B978-0-12-397045-9.00151-8

Sauer, S. E., Burris, J. L., & Carlson, C. R. (2010). New directions in the management of chronic pain: Self-regulation theory as a model for integrative clinical psychology practice. Clinical Psychology Review, 30(6), 805–814. DOI: 10.1016/j.cpr.2010.06.008

Suhardjono. (2014). Transplantasi ginjal. In S. Setiati, I. Alwi, A.W. Sudoyo, M. Simadibrata, B. Setiyohadi, & A.F. Syam, Buku ajar: Ilmu penyakit dalam (6th ed., pp 2227-2240). Jakarta: Interna Publishing.

Susalit, E. (2014). Transplantasi ginjal. In S. Setiati, I. Alwi, A.W. Sudoyo, M. Simadibrata, B. Setiyohadi, & A.F. Syam, Buku ajar: Ilmu penyakit dalam (6th ed., pp 2227-2240). Jakarta: Interna Publishing.

Slesnick, N., Pienkos, S., Sun, S., Doss-McQuitty, S., & Schiller, B. (2015). The chronic disease self-management program--A pilot study in patients undergoing hemodialysis. Nephrology News & Issues, 29(4), 22-3, 27-8, 30-2..

Solberg Nes, L., Roach, A. R., & Segerstrom, S. C. (2009). Executive functions, self-regulation, and chronic pain: A review. Annals of Behavioral Medicine, 37(2), 173–183. DOI: 10.1007/s12160-009-9096-5.

Strauman, T. J. (2017). Self-Regulation and Psychopathology: Toward an Integrative Translational Research Paradigm. Annual Review of Clinical Psychology, 13, 497-523. DOI: 10.1146/annurev-clinpsy-032816-045012

Subramanian, L., Quinn, M., Zhao, J., Lachance, L., Zee, J., & Tentori, F. (2017). Coping with kidney disease - qualitative findings from the Empowering Patients on Choices for Renal Replacement Therapy (EPOCH-RRT) study. BMC Nephrology, 18(1),119-129. DOI: 10.1186/s12882-017-0542-5

Suganthi, S., Porkodi, A., & Geetha, P. (2020). Assess the illness perception and treatment adherence among patients with end-stage renal disease. Iranian Journal of Nursing and Midwifery Research, 25(1),12-17. DOI: 10.4103/ijnmr.IJNMR_74_19

Susandijani. (2018). CAPD, solusi terapi penderita gagal ginjal? Cek Plus Minusnya. Diakses pada 10 November 2019 dari https://gaya.tempo.co/read/1147254/capd-solusi-terapi-penderita-gagal-ginjal-cek-plus-minusnya

Vohs, K.D. & Baumeister, R.F. (2011). Handbook of self-regulation 2nd ed. New York: The Guilford Press.

Yousefi, H., & Shahgholian, N. (2015). Supporting hemodialysis patients: A phenomenological study. Iranian Journal of Nursing and Midwifery Research, 20(5), 626 – 633. DOI: 10.4103/1735-9066.164514

Zarmehri, N. S., Hassanzadeh, F., Aghebati, N., & Sharifipour, F. (2018). Comparison of the effects of using self-regulation theory and self-care education on medical adherence in patients receiving peritoneal kidney dialysis. Evidence Based Care Journal, 8(3),35-45. DOI: 10.22038/ebcj.2018.29148.1723



DOI: https://doi.org/10.22146/jpsi.61144

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