Dukungan keluarga dan “komunitas” sesama penderita: studi pada pasien dengan hemodialisis di rumah sakit

https://doi.org/10.22146/bkm.35384

Windri Lesmana Rubai(1*), Retna Siwi Padmawati(2), Yanri Wijayanto Subronto(3)

(1) Departemen Perilaku Kesehatan, Lingkungan, dan Kedokteran Sosial, Fakultas Kedokteran, Kesehatan Masyarakat, dan Keperawatan, Universitas Gadjah Mada
(2) Departemen Perilaku Kesehatan, Lingkungan, dan Kedokteran Sosial, Fakultas Kedokteran, Kesehatan Masyarakat, dan Keperawatan, Universitas Gadjah Mada
(3) Departemen Ilmu Penyakit Dalam, Fakultas Kedokteran, Kesehatan Masyarakat, dan Keperawatan, Universitas Gadjah Mada
(*) Corresponding Author

Abstract


Support from spouse and hospital-based self help group members for hemodialysis patients in public hospital

Purpose: This study aims to document examples of social support given by hemodialysis friends and self-help group to people undergoing hemodialysis in the hospital.

Method: This is a qualitative research with phenomenology research design. Subject was selected using purposive sampling based on criteria inclusion and maximum variation. Data were collected by in-depth interview, consisted of 11 informants (6 male and 5 female) with length of hemodialysis experience between 6 months to 2 years. In addition, family were also invited for in-depth interview. The validity of data were assessed through triangulation and peer debriefing.

Results: This study documented examples of friendliness among people who undergoing hemodialysis in the hospital. Occasionally they schedule community meetings or just a joint meal between patients and families after the hemodialysis therapy schedule takes place. At such meetings, they can exchange experiences and transfer the information from the old members to the new one. The group involved activities outside the hospital, the group involved new members to work together at local and national events in support of chronic kidney diseases patients.

Conclusion: Our findings show that depressed patient who undergoing the hemodialysis gained new perception of their diseases and got a support to continue their treatment through self-help group. This research emphasize the role of hospitals as entry points for sufferers to find groups of fellow sufferers whose social support programs.


Keywords


hemodialysis; self-help groups; social support; social support group

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References

  1. Aglen B, Hedlund M, Landstad BJ. Self-help and self-help groups for people with long-lasting health problems or mental health difficulties in a Nordic context: a review. Scand J Public Health. 2011;39: 813–822.
  2. Trojan A, Nickel S, Kofahl C. Implementing “self-help friendliness” in German hospitals: a longitudinal study. Health Promot Int. 2014;31: 303–313.
  3. Stang I, Mittelmark MB. Intervention to enhance empowerment in breast cancer self-help groups. Nurs Inq. 2010;17: 47–57.
  4. National Kidney Foundation. About Chronic Kidney Disease - The National Kidney Foundation [Internet]. 2017 [cited 2017 Apr 11]. Available from: https://www.kidney.org/atoz/content/about-chronic-kidney-disease
  5. Palmer SC, Hanson CS, Craig JC, Strippoli GFM, Ruospo M, Campbell K, et al. Dietary and fluid restrictions in CKD: A thematic synthesis of patient views from qualitative studies. Am J Kidney Dis [Internet]. 2015;65(4):559–73. Available from: http://dx.doi.org/10.1053/j.ajkd.2014.09.012
  6. Dalal AK. Health Beliefs and Coping with Chronic Diseases. first. New Delhi: SAGE Publication India Pvt Ltd; 2015.
  7. Mawarpury M. Coping Sebagai prediktor kesejahteraan psikologis : studi meta analisis. 2013;38–47.
  8. Poorgholami F, Abdollahifard S, Zamani M, Jahromi MK. The Effect of Stress Management Training on Hope in Hemodialysis Patients. 2016;8(7):165–71.
  9. Glanz K, Rimer BK, Vismanath K. Health Behavior and Health Education. 4th ed. USA: Jossey-Bass; 2008.
  10. Fumi O. Naughton. Stress and Coping [Internet]. California State University, Northridge. 1997 [cited 2017 Nov 8]. Available from: http://www.csun.edu/~vcpsy00h/students/coping.htm
  11. Khalil AA, Abed MA. Perceived Social Support is a Partial Mediator of the Relationship Between Depressive Symptoms and Quality of Life in Patients Receiving Hemodialysis. Arch Psychiatr Nurs [Internet]. 2014;28(2):114–8. Available from: http://dx.doi.org/10.1016/j.apnu.2013.11.007
  12. Silva RAR da, Souza VL de, Oliveira GJN de, Silva BCO da, Rocha CCT, Holanda JRR. Coping strategies used by chronic renal failure patients on hemodialysis. Esc Anna Nery - Rev Enferm [Internet]. 2016;20(1):147–54. Available from: http://www.gnresearch.org/doi/10.5935/1414-8145.20160020
  13. Nazly E Al, Ahmad M, Musil C, Nabolsi M. Hemodialysis Stressors and Coping Strategies Among Jordanian Patients On Hemodialysis: A Qualitative Study. 2013;40(4):321–7.
  14. Surahmiyati S, Yoga BH, Hasanbasri M. Dukungan sosial untuk orang dengan gangguan jiwa di daerah miskin : studi di sebuah wilayah puskesmas di Gunungkidul. :403–10.
  15. Muhammad S, Allan M, Ali F, Bonacina M, Adams M. THE RENAL PATIENT SUPPORT GROUP: SUPPORTING PATIENTS WITH CHRONIC KIDNEY DISEASE THROUGH SOCIAL MEDIA. J Ren Care [Internet]. 2014 Sep [cited 2018 May 24];40(3):216–8. Available from: http://doi.wiley.com/10.1111/jorc.12076
  16. Coulson NS, Greenwood N. Families affected by childhood cancer: an analysis of the provision of social support within online support groups. Child Care Health Dev. 2012;38: 870–877.
  17. Finlay KA, Peacock S, Elander J. Developing successful social support: An interpretative phenomenological analysis of mechanisms and processes in a chronic pain support group. Psychol Health [Internet]. 2018;0446(January):1–26. Available from: https://www.tandfonline.com/doi/full/10.1080/08870446.2017.1421188
  18. Nickel, S., Trojan, A., & Kofahl, C. (2017). Involving self‐help groups in health‐care institutions: the patients’ contribution to and their view of ‘self‐help friendliness’ as an approach to implement quality criteria of sustainable co‐operation. Health Expectations, 20(2), 274-287.
  19. Castro, E. M., Van Regenmortel, T., van Wanseele, C., Sermeus, W., & Vanhaecht, K. (2018). Participation and healthcare: a survey investigating current and desired levels of collaboration between patient organizations and hospitals. Journal of Social Intervention: Theory and Practice, 27(4).



DOI: https://doi.org/10.22146/bkm.35384

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